An Update
Thanks to everyone for your prayers, emails, and comments! Here's the latest:
Most importantly, NO HOSPITAL STAY for us at this time. Whatever else may be going on, her sodium levels, etc are not so far out of whack that they will put her in the hospital.
But, we really don't know what's up. We are doing two things to follow up.
- First, we're going to get an appointment with a pediatric endocrinologist to check out what's up with her hormone levels. It is apparently not entirely unexpected that a hydrocephalus baby might have some issues in this area. Don't know yet when this can happen. Late on the 3rd of July isn't a great day to get calls back.
- Second, we're going to get an MRI (general anaesthesia, yuck, with contrast agent, double yuck) to make sure nothing new is happening in her brain. This last bit seems unlikely, because her head circumference measures are remaining pretty steady. This will happen at 2:30 PM on Friday, July 18.
The biggest potential offender at this point is something called diabetes insipidus .
Sam was a champ at the appointment and giggled in her car seat all the way home while I sulked and mulled over all the possibilities. It's very hard to sulk with a baby yodeling and laughing out loud right behind you.
For the record, she's also a musical prodigy with a fantastic ear. She was so good with Farmor's piano this past weekend, I bought her a little xylophone, which she just loves. Perhaps we'll post more pictures from Farmor's if she can be kind enough to forward the ones she took (hint, hint!).
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I am soooo glad there was no hospital stay. This sounds like positive news, but I know there are still more tests to come and more doctor visits. We will all be thinking of you and sending good thoughts and lots of prayers your way. How can anyone so adorable possibly have anything wrong with her??? She is just to cute to be anything but perfect!!!!
Hugs,
Wendy
Kim, I work for with your father at Informa Economics. He lights up when he talks about Samantha. And he tells me you have a lot on your plate right now. Slow down and breathe slowly. Time will take care of a lot of that platefull. Know that you and your family are in my prayers as I pray for good rest and patience for you and Carl, progression of activity for Samantha and good news come February. I just wanted to let you know I am thinking of you and your lovely family.
Ann Collins