April 2010 Archives

So what do you think - did she like it?

Samantha was an absolute champ at her EEG.  They put 32 electrodes on her head with some sort of sticky goo (NOT her favorite sort of experience), wrapped her head in gauze, and had her lie still for a full hour.  She was just awesome and did a great job of staying still.  The only time she cried or complained was when I stopped reading to her briefly, and once again when the test was done and she didn't like waiting to get all of the electrodes off.  I am just sure 9 of 10 toddlers could not have been so patient.

Hippotherapy?  Is that therapy with hippos?  For hippos?  Noooooo....  It's therapy for Sam!  With horses!  Small horses!  Cute horses!

Sam's had a couple of chances to play with these at therapy, but today we got one of our very own to bring home!  It's revolutionary.  It allows her to get around independently and explore without having to depend 100% on other people.  I can't wait to see the impact on her self-confidence and her curiosity.

God's blessings have showered down on us all year, but we really saw the "fruit" at Sam's 3 year well-child check.  Her numbers really look great.  Her pediatrician said for the first time EVER that she "wasn't worried about her weight at this time".  Awesome.  At 1 year, we were talking about GI tubes.  At 2 years, we were talking about feeding clinics.  At 3 years:

Weight: 27 lb 6 oz - 16th percentile!!!!  WAAAAY up from zero to 2 percent much of last year!
Height:  36 1/4 inches - 32nd percentile!!!!!  
Head Circumference:  51 cm - 96th percentile!  A slight drop - good stuff.  We want her head to grow... but not "expand" with the hydrocephalus.

Great numbers.  Thank you, God!  Continuing to see glimmers that she will one day be considered the "most studied normal child in history".

God's blessings have showered down on us all year, but we really saw the "fruit" at Sam's 3 year well-child check.  Her numbers really look great.  Her pediatrician said for the first time EVER that she "wasn't worried about her weight at this time".  Awesome.  At 1 year, we were talking about GI tubes.  At 2 years, we were talking about feeding clinics.  At 3 years:

Weight: 27 lb 6 oz - 16th percentile!!!!  WAAAAY up from zero to 2 percent much of last year!
Height:  36 1/4 inches - 32nd percentile!!!!!  
Head Circumference:  51 cm - 96th percentile!  A slight drop - good stuff.  We want her head to grow... but not "expand" with the hydrocephalus.

Great numbers.  Thank you, God!  Continuing to see glimmers that she will one day be considered the "most studied normal child in history".

Photos to come, but...

Sam turned 3.  Pictures to come!

We went to visit Grandma and Grandpa in Memphis and had a BLAST.  Pictures to come!

Farmor and Papa G came to visit us, and we had a great time with them too.  More pictures to come!

Sam's CISD teacher started visiting her at pre-school, and it's going very, very well.

Samantha rides a tricycle.

Ally jogs.

Sam loves all things related to trains.

Ally says "no."  Often.

Ally has struggled through a 3 week, double ear infection that was not cured by the first round of antibiotics.  Antibiotics continue to wreak havoc on her digestive system.  Fun for all.

The girls went to a petting zoo, and Alexa enjoyed sneaking up on the animals to quickly touch them, then jumping back to safety.

They both enjoyed Easter very much.  Samantha remembered and enjoyed dying eggs, getting an Easter basket, and hunting for Easter eggs, and Alexa followed right along.  I think Ally is understanding these things earlier than Sam did because she can watch Samantha's interactions with them.

Best of all - NO MORE SEIZURES!!!!

All is well.  EEG scheduled in a couple of weeks, but no follow up MRI for now.

More soon - didn't want to let a full month go by without posting.