April 2010 Archives

Hippotherapy: Day 1

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So what do you think - did she like it?

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No News = Good News

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Samantha was an absolute champ at her EEG.  They put 32 electrodes on her head with some sort of sticky goo (NOT her favorite sort of experience), wrapped her head in gauze, and had her lie still for a full hour.  She was just awesome and did a great job of staying still.  The only time she cried or complained was when I stopped reading to her briefly, and once again when the test was done and she didn't like waiting to get all of the electrodes off.  I am just sure 9 of 10 toddlers could not have been so patient.

Her neurologist was supposed to get a report on Thursday, and we'll receive it by mail in about 2 weeks.  I assume we would hear from the neuro if they found anything alarming, so we'll just wait... and wait.

Meanwhile, we are enjoying greatly her increasingly chatty personality.  My favorite word right now is "somewho", as in "Somewho is at the door!".

"Hippotherapy" and EEG

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Hippotherapy?  Is that therapy with hippos?  For hippos?  Noooooo....  It's therapy for Sam!  With horses!  Small horses!  Cute horses!

We had an evaluation today and will have our first session next Tuesday.  She'll ride a pony named Bailey.  She's met Bailey twice and is pretty excited to see her again, although when asked if she'd like to sit on her or ride her, Sam answers brightly "No!" with the same sort of chirpy enthusiasm you'd expect to hear with "Yes!"  We'll see how it goes.

The evaluation today went quite well, especially given that when I picked Sam up at school beforehand she had just gotten covered in dirt by one of the little boys in her class.  Sam definitely doesn't like messes, especially on her.  All the way from school to the barn, she was pointing out each and every speck of mulch I'd failed to remove from her shirt, shoes, socks, seat belt...  Interestingly, she wasn't upset when I got there, and babbled about going down the slide on her tummy.  Nor was she upset while we were around the horses.  Hmmm.  

In other news, Weds am we're taking her in for an EEG as follow up on her seizure last month.  I have to be at Memorial Hermann checking in at 7:30 am, with Sam fed, clothed and with a fresh shampoo.  Ugh.  I'll keep you posted on what we learn... after I have a nap and earn my keep for the day.


Sam's New Scooter

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Sam's had a couple of chances to play with these at therapy, but today we got one of our very own to bring home!  It's revolutionary.  It allows her to get around independently and explore without having to depend 100% on other people.  I can't wait to see the impact on her self-confidence and her curiosity.

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Here I just think she's cute.

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Not to be forgotten, here's little sis'.  Wearing a skirt, as usual.  And running, as usual.  She's the toughest girly girl I know.
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Meanwhile, I can hardly believe it's spring, but the pollen levels tell me it's true.  All of the yellow in this picture is comprised of bright yellow flowers on the vines on this tree.  Hummingbirds love our house!  The other day one buzzed the girls' bright pink bottle of bubbles.
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Samantha's 3 Year Check-Up

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God's blessings have showered down on us all year, but we really saw the "fruit" at Sam's 3 year well-child check.  Her numbers really look great.  Her pediatrician said for the first time EVER that she "wasn't worried about her weight at this time".  Awesome.  At 1 year, we were talking about GI tubes.  At 2 years, we were talking about feeding clinics.  At 3 years:

Weight: 27 lb 6 oz - 16th percentile!!!!  WAAAAY up from zero to 2 percent much of last year!
Height:  36 1/4 inches - 32nd percentile!!!!!  
Head Circumference:  51 cm - 96th percentile!  A slight drop - good stuff.  We want her head to grow... but not "expand" with the hydrocephalus.

Great numbers.  Thank you, God!  Continuing to see glimmers that she will one day be considered the "most studied normal child in history".

Samantha's 3 Yr Checkup

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God's blessings have showered down on us all year, but we really saw the "fruit" at Sam's 3 year well-child check.  Her numbers really look great.  Her pediatrician said for the first time EVER that she "wasn't worried about her weight at this time".  Awesome.  At 1 year, we were talking about GI tubes.  At 2 years, we were talking about feeding clinics.  At 3 years:

Weight: 27 lb 6 oz - 16th percentile!!!!  WAAAAY up from zero to 2 percent much of last year!
Height:  36 1/4 inches - 32nd percentile!!!!!  
Head Circumference:  51 cm - 96th percentile!  A slight drop - good stuff.  We want her head to grow... but not "expand" with the hydrocephalus.

Great numbers.  Thank you, God!  Continuing to see glimmers that she will one day be considered the "most studied normal child in history".

What's New?

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Photos to come, but...

Sam turned 3.  Pictures to come!

We went to visit Grandma and Grandpa in Memphis and had a BLAST.  Pictures to come!

Farmor and Papa G came to visit us, and we had a great time with them too.  More pictures to come!

Sam's CISD teacher started visiting her at pre-school, and it's going very, very well.

Samantha rides a tricycle.

Ally jogs.

Sam loves all things related to trains.

Ally says "no."  Often.

Ally has struggled through a 3 week, double ear infection that was not cured by the first round of antibiotics.  Antibiotics continue to wreak havoc on her digestive system.  Fun for all.

The girls went to a petting zoo, and Alexa enjoyed sneaking up on the animals to quickly touch them, then jumping back to safety.

They both enjoyed Easter very much.  Samantha remembered and enjoyed dying eggs, getting an Easter basket, and hunting for Easter eggs, and Alexa followed right along.  I think Ally is understanding these things earlier than Sam did because she can watch Samantha's interactions with them.

Best of all - NO MORE SEIZURES!!!!

All is well.  EEG scheduled in a couple of weeks, but no follow up MRI for now.

More soon - didn't want to let a full month go by without posting.